UK, MECFS survey, NICE
Deadline 7th October
For UK residents with #MECFS, the ME Action Network have put together a survey to provide further evidence to the National Institute for Health and Care Excellence (NICE), which is updating its guidelines on myalgic encephalomyelitis (ME).
The survey asks about advice given on managing your symptoms when you first spoke to a healthcare professional, and your experience at ME/CFS clinics in the UK, including the treatments and advice provided. It also asks what you would have found most helpful in hindsight.
Please boost. Thanks :)
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